I’d kill her but I think she’s gonna beat me to it.

While I was in the hospital getting my iron infusion however long ago, Princess Punk was upstairs seeing Dr. Hottie. Given my general feeling of crappiness, I didn’t post at that time. But tonight, sitting here writing out a heartfelt plea for financial assistance for Diabetes Camp while simultaneously snapping at The Princess to “quit fucking around and test your sugar already,” I decided it was time for a good, hearty, Diabetes Sucks/My Teenager ia an Asshole post.

Her A1C is back up. 9.2. Giving her an average blood sugar for the 3 months prior of, (angry drumroll please) 250. That’d be more than twice the high end of normal (70-120).

Part of this is hormones. Without a doubt, because the D-Monster is a savage, unpredictable jackhole, some of the high blood sugar readings she gets are completely out of her control.

Most of it though? Most of those red numbers on the neat little graphs generated when we upload her data from her insulin pump, most of those long gaps with no numbers at all and God only knows how high they were then…

That’s her doing.

To be more accurate, that’s her NOT doing. NOT testing her blood sugar. NOT covering any high numbers with extra insulin (aka bolus). NOT bolusing every time she eats. NOT giving the carb count in her food more than a perfunctory guess.  NOT bolusing for the carbs that she actually does calculate.

I don’t know what’s wrong with her. I don’t know why she isn’t doing these things. Granted, some of it is just a pain in the ass so maybe she’s just skipping it. But there are times on the graph when she tested her blood sugar and did not bolus a high number. Which means she took out her meter, put a test strip in it, pricked her finger, put a drop of blood on the strip, wiped off her finger (usually on the kit itself or her pants, ew), felt her insulin pump buzz because the reading was outside of the “happy” range and then didn’t press the one button that would deliver the extra insulin she needed. That could not have possibly been a forgetful mistake. She can do it without even looking. I’ve seen it.

She made a conscious decision to NOT give herself something vital that her body desperately needs.

I do not understand. And I don’t know what to do. She’s 13. We can’t do it for her. It’s just not possible.I was pondering whether or not we could admit her somewhere so she could be monitored 24/7. So that every bite of food, every carb she eats, every drop of insulin is carefully accounted for and recorded. At least that way we would know how much insulin she actually needs. We can’t even figure that out right now because she is so inconsistent with testing and entering what she eats.

We’ve been seeing a behavioral therapist for awhile now. The Zen Master and I have been working hard at trying to get some kind of system in place that would help Princess Punk be more mindful about taking care of herself. The Princess herself is about as compliant with therapy as she is with her diabetes management. Should she deign to come into the session with us, she sits there sullenly and responds only to direct questions and only with a mumbled, “I guess or, “I dunno.”

And there it is. The D-Monster is taking the lead. It bolted out of it’s tight grip and is now dragging us down the road on our knees while we valiantly try to hang on to the leash.

Diabetic nephropathy – The syndrome can be seen (in lab results) in patients with chronic diabetes, after about 5 years in type 1 diabetes (that’d be 2 years from now. TWO). Clinical nephropathy (visible on medical imaging) secondary to diabetes usually manifests 15–25 years after diagnosis of diabetes and affects 25-35% of patients under the age of 30 years. It is the leading cause of premature death in young diabetic patients (between 50 and 70 years old). The disease is progressive and may cause death two or three years after the initial lesions. The risk is higher if blood-glucose levels are poorly controlled.

Diabetic nephropathy continues to get gradually worse. Complications of chronic kidney failure are more likely to occur earlier, and progress more rapidly, when it is caused by diabetes than other causes. Even after initiation of dialysis or after transplantation, people with diabetes tend to do worse than those without diabetes. (Wikipedia)

 

 

In 15 years, Princess Punk will be 28 years old.

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